Central Texas Congressman Introduces Undiagnosed Disease Registry Bill
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Central Texas Congressman Introduces Undiagnosed Disease Registry Bill
Central Texas Congressman John Carter Thursday introduced a bill creating a national database on undiagnosed illnesses.
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WASHINGTON (May 21, 2009)—Rep. John Carter, R-Round Rock, introduced a bill Thursday that would create a national database of undiagnosed diseases maintained by the U.S. Centers for Disease Control and Prevention to advance detection, treatment and cure of undiagnosed and unregistered illnesses.

The “Charles August Long ‘Cal” Undiagnosed Disease Registry Act of 2009” is named in honor of 5-year-old Carl August Long of Cedar Park who died in December of 2006 of an undiagnosed illness, Carter said.

The boy’s mother, Heather Long, joined Carter in a news teleconference Thursday to discuss the bill.

She approached Carter about helping with the legislation after her son lost his three-year struggle against an illness that was never diagnosed.

Carter said the database would also benefit the country’s veterans.

“Nearly every war invariably produces veterans who have contracted previously unknown ailments and illnesses,” Carter said.

“This bill could significantly lessen the amount of time necessary to research and diagnose their symptoms and develop effective treatments. It could also provide an early warning system in the event our military personnel were unknowingly exposed to chemical or biological agents,” he said.


Latest Comments

Posted by: Kimberly Location: Taylor, Texas on Jun 9, 2009 at 04:37 PM

What exactly will the database have in it? I have been sick with several undiagnosed diseases that have messed up my life for 30 years. How will it help me?
Posted by: Blair Location: Houston, Texas on Jun 1, 2009 at 09:51 AM

How do we support the plan???
Posted by: Frank Location: Huntsville on May 26, 2009 at 02:51 PM

This is a great plan
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