Man with rare kidney disease working to raise awareness

WACO, Texas (KWTX) A Central Texas man with a rare kidney disease is not letting it hold him back as he continues to battle, while raising awareness.

Kelby Thompson was diagnosed with Focal Segmental glomerulosclerosis when he was 3-years-old.

Since then, his life has been a blur of doctors’ visits, medication, dialysis and even two failed kidney transplants.

Rather than sitting around feeling sorry for himself, Thompson decided to pursue a career in a field he was far too familiar with: nursing.

He recently became an registered nurse.

Kelby believes that since he's been a lifelong patient he can ease his patients concerns and make them feel more comfortable.

Now he is asking for the community’s help. He needs another kidney transplant and this time doctors believe that a kidney from a living donor will give him the best shot at a long term solution.

A fundraiser will be held Saturday at Lakeside Tavern in Waco.

His family hopes to raise money for the part of the treatment that insurance won't cover.

More importantly, they want to raise awareness.

He can only receive O blood type products and if you're not a match for him, he sincerely hopes you'll consider donating to someone else.